----- Original Message -----
From: Ebell, Wolfram
To: GENTEST-Info
Sent: Tuesday, July 10, 2007 6:06 PM
Subject: AW: BMT-Ilja Mracek

Dear Mr. and Mrs. Mracek,
 
meanwhile I heard that you are planning to go to Israel, which would be o.K with me, because of very similar transplant protocols for FA and enough experience there.
Regarding the transplant costs at the Charité it is probably a misunderstanding. In fact, the primary transplant costs are around 130.000,-- € for the in-patient time up to 2 months. For the majority of FA patients this time is enough to start the follow up completely on an outpatient basis. The problem is, that in a minority of patients the inhouse stay has to be prolonged because of infectious complications or in case that a second transplant is required. Then the costs might go up to 250.000,-- to 300.000,-- €, and the Charité always wants to have a guarantee in advance.  Unfortunately, I have no influence on the financial policy of the Charité. In any case, it will probably less expensive in Jerusalem.
 
Then you asked about my offer to give some help for a transplant done at Motol. That was indeed the case by an Email contact with Dr. Zwaan in the Netherlands and Prof. Stary in Prague. But then I did not hear anything anymore.
 
If you have already arranged everything with Prof. Slavin, then you might go there. You are clearly in good hands.
What ever you decide, I wish you all the best and hope to hear from you
 
Wolfram Ebell
 
Pediatric Bone Marrow Service
Charité, Campus Virchow-Klinikum
Augustenburger Platz 1
D-13353 Berlin
Tel: x49-30-450 566014
Fax: x49-30-450 566919
Email: wolfram.ebell@charite.de